EB Community Message Forum :: EB Awareness and Fundraiser Ideas :: Awareness Ideas and Products :: eb project ! Author Topic: eb project ! (Read 123 times)
pascale Egg member is offline Joined: Sept 2007 Posts: 1eb project ! « Thread Started on Sept 8, 2007, 9:42pm »
Hello, My name is Pascale and I am currently starting a project with my fiancé, Dan, to spread EB awareness. Dan has EB, most likely Junctional, although doctors still can't say for sure. He's 21 and has taken up photography about 2 years ago. We recently had an idea to make an EB photo book, to show what EB is, spread awareness in an artistic way and of course send the proceeds to EB organisations such as DebRA. I am writing this message, hoping to find contacts in our area, Montreal, QC, Canada. If you are or know someone with EB in our city who would agree (or whose parents would agree) to let us take pictures for this cause, we would really appreciate. My email is pascale.poirier@gmail.com or you can answer this message directly on the thread. Thanks a lot.
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